TRUTH & CONSEQUENCE: Testimonials on Living with HIV
Posted by griotcircle
In commemoration of World AIDS Day, GRIOT Circle honors the lives of loving, inspirational and courageous souls who transitioned too soon, by passing forward the wisdom they imparted from their battle with HIV and AIDS. Here, in their own words, we share an excerpt from the oral history project Without the Burden of this Secret. The conversations on HIV/AIDS in the POC LGBT elder community today, bear many common threads to the sentiments and experiences in these interviews which occurred 20 years ago in New York City.
LOUIS GRANT :: OPEN & OUT
“I have lost a lot of friends to AIDS. Too often I have thought that some unnecessarily allowed themselves to succumb to the disease. They did not fight, they were not positive [minded] they accepted the diagnosis as a statement of impeding doom. It seems to me that we black folk have moved slower in acknowledging the impact of this disease on our community. Our people are suffering and dying because too often we are afraid to come out to our family…to our friends at a time when we need them most. I think it’s very important to be out in terms of being a homosexual man and as a person with AIDS. I’m out in every context: in my home, in my work situation. I think carrying the burden of this secret, as so many of us do, when one has AIDS it just contributes to the illness. It dos not make sense at this point in one’s life, when one needs to grasp all the life preserves one can, to not be open and out. For me it’s another effective survival tool.”
JOE LONG :: SURVIVING DEMON DOCTORS
“I was diagnosed with the HIV virus in 1989. I was tested when I discovered a parotid cyst in my right cheek. I was putting all kinds of solutions and compresses on it and it wouldn’t go down. I finally decided to get to a doctor at New York Ear Nose and Throat. The first thing he said to me was, “This is typical of gay fellas, why don’t you go take the test?” Swollen glands and parotid cysts were nothing unusual, so I said I didn’t want to take the [AIDS] Test, I didn’t think that that was necessary, I wanted to see what we could do about the swelling, but he insisted. So I did. When I came back ten days later he told me my results were positive and to go get on AZT—as simple as that. I asked if there was something he could do about the cyst. He said that, I needed to find somebody who could put me on AZT. He conferred with his partner and just left it like that. [Were they caucasian doctors?] A Jewish doctor and an East Indian doctor. There was no pre- nor post-test counseling. And when I asked for my records so that I could follow-up on the cyst, they directed me to the records department and said that I could take them to any doctor I’d like. They didn’t offer to treat me any further. So I was like in the street.”
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About griotcircleGRIOT Circle is an intergenerational and culturally diverse community-based social service organization responsive to the realities of older lesbians, gay men, bisexuals, two-spirit and transgender people (LGBTST) of all colors. The Brooklyn-based non-profit was founded in 1996 by Regina Shavers to promote healthy living and sustainability, and support the unique social services needs of the LGBTST elders community in New York.
Posted on November 30, 2011, in Discrimination, Inspire Someone, Keeping Active, Living with AIDS, My Bisexual Lifestyle, My Gay Lifestyle, My Lesbian Lifestyle, My Transgender Lifestyle, My Two-Spirit Lifestyle, Our Rich Legacy, Pride & Politics, Retired & Living, Surviving AIDS and tagged AIDS, AIDS in Black America, Antiretroviral drug, Aptivus, Atripla, CDC, Church, Combivir, Crixivan, Health Care Disparities, Healthy Living, HIV, Retrovir, Safe Sex, Sex, Sexually transmitted disease, STD, Truvada, Viread, World AIDS Day, Zerit. Bookmark the permalink. Leave a comment.